Additional Resources Cerebral Palsy
American Academy of Cerebral Palsy and Developmental Medicine The American Academy of Cerebral Palsy and Developmental Medicine is dedicated to improvement in the care of people with childhood-onset disability, their families, and communities. Their website offers various resources for individuals and families, including a directory of providers.
Centers for
Disease Control and Prevention (CDC)
The CDC is the main government agency overseeing disease
research, management, and information sharing.
Cerebral Palsy International Research
Foundation
CPIRF is a not for profit 501(c)3 organization that funds
research and educational activities related to the cause, cure
and evidence-based care for those with cerebral palsy. The
website has over 160 “research fact sheets”, web casts of
scientific workshops, current and past research projects,
discussion forums for current CP treatments, and a link to a
registry of clinical trials in the United States and around the
world.
CP Daily Living
CP Daily Living is an online resource designed to give families
and caregivers of children with cerebral palsy a central place
for practical information and resources within the context of an
emotionally-supportive environment.
Easter Seals Of California Provides information about the Easter Seals Society programs they provide and the agency’s services.
Let’s Cure CP
Let’s Cure CP is a non-profit organization committed to funding
cerebral palsy research.
My Child Without
Limits
MyChildWithoutLimits.org provides resources for families of young
children ages 0-5 with developmental delays or disabilities,
including CP. A “Guide to CP” can be downloaded from this site.
The site also has a national Resource Locator where visitors can
find local service providers, community organizations and
government agencies.
Reaching for the
Stars
RFTS is the only non-profit pediatric cerebral palsy foundation
in the US led by parents. RFTS is committed to advocacy,
education and driving research to serve the needs of children
with CP and the individuals involved in their care.
United Cerebral Palsy
(UCP)
United Cerebral Palsy (UCP) educates, advocates and provides
support services for people with a spectrum of disabilities,
including CP. The site has a One Stop Resource Guide where
visitors can locate organizations in each state to help answer
questions about healthcare, home modifications, or financial
assistance.